RAF FLYINGDALES: MARCH FOR EVIE

RAF Flyingdales are running an appeal for ‘little superhero’ Evie Hodgson.

Between November 8th -13th 2020 a group of all female RAF recruiters are aiming to undertake a mammoth 100 mile walk between them (with their male colleagues offering socially distancing support). RAF recruiters will walk the length and breath of the North East and West of England including Middleborough, Liverpool, Manchester and Sheffield. With half of the proceeds going to DKMS UK. Contingency plans are in place is case the planned route/s are inaccessible due to lockdowns or poor weather . In these cases, the walkers will complete the 100-mile walk on a set of indoor treadmills. A BIT ABOUT EVIE...

Evie, 8, from North Yorkshire was diagnosed with Very Severe Aplastic Anaemia, also known as bone marrow failure, during the coronavirus lockdown. One day she was happily playing with her 5 year old brother William, and the next she was hospitalised. The only cure for this condition is a blood stem cell transplant.

A matching blood stem cell donor found; Evie has and the transplant which was scheduled for early September 2020, but tragically, the family were later informed that the potential donor had become unavailable with only weeks to go before her transplant date.

Since receiving this news Evie’s world has been turned upside down.

Preparations for the transplant had already begun and Evie had undergone dental work and ovarian cryopreservation (ovary removal), leaving her with improved fertility and conception options in the future. This is because the chemotherapy involved in the conditioning process would have likely made her infertile.

Evie had also had an immuno suppressant treatment which causesnausea, increased blood pressure and weight gain to name a few.

As well as raising awareness for Evie and others in a similar situation, we are encouraging you to check your eligibility and apply to join the blood stem cell donor register.
If you do you could potentially save a life #lifesaver #dkms.

If you are not eligible to register, you could still support our lifesaving work by making a financial contribution to help us cover the cost of registering more lifesavers in waiting.

Every 20 minutes, someone is diagnosed with blood cancer. This diagnosis is devastating, and during the corona virus outbreak, it is even more crucial that we do all we can to offer hope to people with blood cancer and blood disorders. We have seen the numbers of people joining the blood stem cell register decline dramatically in recent times, and now, more than ever before, we need you to sign up. For many, a blood stem cell donation is their best chance of recovery and only 30% of people find a match within their family. This means the remainder will need to find an anonymous blood stem cell donor, and that could be you.

Information about registration

Registering as a blood stem cell donor is easy, simply check your eligibility and request your home swab kit. Once you receive the kit, you will need to swab the inside of your cheek, following the instructions on the pack, before sending them back to us. Once we receive your swabs, they are processed in our lab to determine you tissue typing. Your typing is then stored, in an anonymised form, on the global database. This means you can be identified as a match for anyone in the world

A note about Coronavirus

We understand there are lots of worries and concerns around coronavirus and would like to reassure you that it is completely safe to request and send in your swabs.

If you're a match

If you are identified as a match, you will donate in one of two ways. In the majority of cases this is via a process called “Peripheral Blood Stem Cell collection”, which is a little like giving blood. In 10% of cases, the stem cells are taken from your bone marrow, under general anaesthetic. The method of donation is chosen by the patients team based on what is most suitable for them.

Together we will beat blood cancer.

To register as a blood stem cell donor, you need to be between 17-55, in general good health and not registered with another donor centre. To check your eligibility and request your swab kit, follow the link below.

It costs us £40 to register a new donor on the UK stem cell registry. As a charity, we rely on monetary donations from the public to help cover this cost and greatly appreciate any contribution, no matter how big or small.

If you are unable to register as a potential donor, we would be very grateful if you could consider making a contribution towards the cost of a registration.