Privacy Policy

Personal data

DKMS ensures that it only collects, processes and makes use of your personal data to the extent that is legally permissible under the Data Protection Act 2018.

All personal data collected by DKMS is subject to a special protection pursuant to the Data Protection Act 2018 and other provisions for data protection which we ensure by means of technical and organizational measures. DKMS employees are obligated to maintain confidentiality. Data protection and data security are a matter of particular importance for us.

Collection of personal data

DKMS only collects, processes and makes use of your personal data to the extent that is legally permissible and required in order to find suitable stem cell donors and to establish contact with you.

If you register as a donor on our Internet site, subscribe to a newsletter, donate money or use other online forms, your data will be transmitted to us in an encrypted form in order to exclude access by unauthorized third parties. In principle, we store your data on specially protected servers. Access to personal data is only possible by a few, specially empowered employees of DKMS who are all familiar with the applicable data protection regulations.

Transmission of your personal-related data to third parties

The purpose of processing your data is to procure stem cell donors to patients in need. Your donor data as well as the results of the typing of your tissue characteristics (HLA typing) will be transmitted in an anonymised form to national and/or international stem cell donor registries. Only such data will be transmitted which is relevant for the donor search. Essentially, this includes a donor identification number, gender, date of birth, tissue typing results, the number of tissue typings conducted to date and the donor status (available or unavailable). Names, addresses or similar identifying data will not be transmitted.

In order to accomplish and fulfil our tasks, we must also co-operate with service providers who receive personal data when it is necessary for this purpose. These service providers are contractually obligated by DKMS to only use the obtained personal data for the agreed purpose and to prevent accidental disclosure to third parties. We assure you that we will not sell or lease your data to other companies or organizations. By no means will we use your e-mail address or other data without your consent for other purposes for which you have not granted any consent.


As a potential donor you will receive regular newsletters, medical information, process-related updates and general information about DKMS.

If you don't want to receive further e-mails, you can unsubscribe by sending an e-mail to with the subject "NONEWS”

Storage of IP addresses and cookies

In order to access DKMS websites, registration of the IP address is required for a short period of time. The IP address is the globally valid, unique identification of a computer that consists of four number blocks separated by dots. In general, you will not use an IP address that remains the same as a private user because your provider only allocates this address to you temporarily for each session. Nevertheless, a clear allocation of the user data via this feature is, in principle, possible for static IP addresses. Our web server stores IP addresses for a maximum period of 24 hours. Afterwards, the access data will be anonymised.

Use of Piwik Pro analytics

We process personal data based on consent according to Art. 6(1)(a) GDPR, which you are free to give or refuse. You’ll see consent options when you visit our website for the first time. You can change your decisions at anytime by clicking the button below. If you change your decision it will not affect the lawfulness of processing based on consent before its withdrawal.

Purpose: improve site user interface, optimize sales and marketing content
Personal data used: browser cookie, browsing behavior on, device information, IP address
First party involved: Piwik PRO

Piwik PRO Analytics Suite is an analytics and customer data platform. It collects first-party data about website visitors based on cookies, IP and fingerprinting; we create user profiles based on user browsing history and calculate metrics related to website usage such as bounce rate, depth of visits, page views etc. We host our solution on Microsoft Azure infrastructure in the Netherlands and the data is stored for a period of 25 months. (Purpose of processing data: Analytics, Conversion tracking based on consent, Legal basis: Art. 6 (1)(a) GDPR).

Use of AddSearch site search

DKMS uses AddSearch on this website. AddSearch does not store personal data longer than is legally permitted and necessary for the purposes of providing the Services or the relevant parts thereof. The storage period depends on the nature of the information and the purposes of processing. The maximum period may therefore vary per use.

Use of social plugins

Our Internet site uses the social plugins of various social networks. When you access a website on our Internet site that contains a plugin like this, your browser will build up a direct connection to the social networks’ servers. The content of the plugins will be transmitted directly to your browser from the social networks and integrated from this into the website.

By integrating the plugin, the social networks will receive the information that you have accessed on the respective page of our Internet site. If you are logged into one or more social networks, the relevant social networks can allocate the visit to your account. When you interact with the plugins, for example, when you press the "I like it"-button or send a Tweet, the respective information will be directly transmitted from your browser to Facebook and Twitter and subsequently stored there.

Please refer to the corresponding data protection notes with regard to the purpose and scope of the data collection, the further processing and use of the data by the social networks as well as your rights and setting options in this respect for the protection of your private sphere.


DKMS takes no responsibility for the content of external internet sites.

Questions and comments

Do you have questions regarding our data protection references? Please contact us at