Harborough District Council & DKMS

Harborough District Council Logo

You might know our colleague, Joe Mannix, from the Licensing team at Harborough District Council. Joe has Leukaemia, and having recently suffered a re-lapse is now in need of a blood stem cell transplant. We have been working closely with DKMS – a charity focused on raising awareness of blood cancer and blood disorders and increasing the number of people on the blood stem cell register.

We have worked with DKMS to set up this page on the HDC Intranet with more information about how to join the blood stem cell register. We are urging as many people at Harborough District Council to register and help people with blood disorders and blood cancers like Leukaemia find the stem cell donor treatment they so desperately need. It is very quick and easy to do and you could save a life of someone like Joe.

If you’re aged 17-55 and in general good health, you can join the blood stem cell register and become a lifesaver in waiting. All it takes is a three minute cheek swab!

We are pleased to say that we have the full support of CMT at the Council, the only support we need now is yours! Just 2% of the UK population are on the blood stem cell register and yet every 20 minutes, someone in the UK is diagnosed with a form of blood cancer or a blood disorder. That is 2,000 people each year – including Joe – looking for a potential lifesaving blood stem cell donor match.

Please take a moment to read about Joe’s story, and see how you could make a huge difference.

We are also arranging a Teams call if people would like to know more about registering and there will be an opportunity to ask questions to representatives of DKMS.

Joe in Work

Harborough District Council (HDC) employee Joe Mannix, 26, is currently undergoing treatment for Leukaemia, but sadly not for the first time. Joe himself says “life is very different now and his priorities have changed”

Joe, Licensing and Compliance Officer, has progressed through the organisation since he was 20 when he began his career with HDC. With the usual young person’s approach towards life, he spent his days and evenings going out with friends and running on a lack of sleep as well as fearlessness.

A fun and memorable time until at 21, he was diagnosed with Acute Lymphoblastic Leukaemia.

Nikki and Joe

Although his life was on hold for 3 years following the initial diagnosis, it is this time round that he is really feeling the effects of what Leukaemia is doing to his body; chronic joint pain which resulted in a knee replacement as well as other physical disabilities.

In support of this, DKMS and Harborough Council are encouraging staff and members to join the UK blood stem cell register. Joe and many more people like him, need to find that all important genetic match. The motto “Health is Wealth” comes to mind when Joe talks of his life now. Something, that anybody who registers as a potential blood stem cell donor can understand. They may be that missing piece in the puzzle that will give Joe a second chance at life.

Pudding the Dog

With this hope comes the want and need to future proof his life, now long country walks with dog Pudding, and partner Nicky are Joe's reality. “I have become a huge lover of the great outdoors, with regular camping trips these “in the moment experiences” are helping support him and his family through a difficult time in an uncertain year all-round”.

Every 20 seconds someone in the UK is diagnosed with blood cancer, and for many of then a blood stem donation from a stranger is the last, and often only hope of survival. Could you be Joe’s lifesaver in waiting? Register today via the link below. If you are unable to register, why not support DKMS with a donation? Every pound raised will help us to add more donors onto the register and offer more people like Joe a second chance at life.

Every 20 minutes, someone is diagnosed with blood cancer. This diagnosis is devastating, and during the corona virus outbreak, it is even more crucial that we do all we can to offer hope to people with blood cancer and blood disorders. We have seen the numbers of people joining the blood stem cell register decline dramatically in recent times, and now, more than ever before, we need you to sign up. For many, a blood stem cell donation is their best chance of recovery and only 30% of people find a match within their family. This means the remainder will need to find an anonymous blood stem cell donor, and that could be you.

Information about registration

Registering as a blood stem cell donor is easy, simply check your eligibility and request your home swab kit. Once you receive the kit, you will need to swab the inside of your cheek, following the instructions on the pack, before sending them back to us. Once we receive your swabs, they are processed in our lab to determine you tissue typing. Your typing is then stored, in an anonymised form, on the global database. This means you can be identified as a match for anyone in the world

A note about Coronavirus

We understand there are lots of worries and concerns around coronavirus and would like to reassure you that it is completely safe to request and send in your swabs.

If you're a match

If you are identified as a match, you will donate in one of two ways. In the majority of cases this is via a process called “Peripheral Blood Stem Cell collection”, which is a little like giving blood. In 10% of cases, the stem cells are taken from your bone marrow, under general anaesthetic. The method of donation is chosen by the patients team based on what is most suitable for them.

Together we will beat blood cancer.

To register as a blood stem cell donor, you need to be between 17-55, in general good health and not registered with another donor centre. To check your eligibility and request your swab kit, follow the link below.

It costs us £40 to register a new donor on the UK stem cell registry. As a charity, we rely on monetary donations from the public to help cover this cost and greatly appreciate any contribution, no matter how big or small.

If you are unable to register as a potential donor, we would be very grateful if you could consider making a contribution towards the cost of a registration.