Praise is three years old. A bubbly, chatty child, she loves books and reading stories, observing people and learning about life around her. Praise is very creative and likes to draw pictures, make and build things.
Unfortunately not long after her birth she was diagnosed with an inherited auto immune condition called Chronic Granulomatous Disorder (CGD), that occurs when the white blood cells (which usually helps the body fight infections) is compromised. As a result, the body or parts of it for example lungs, skin, lymph nodes are pone to bacterial or fungal infections. Like Praise most people are diagnosed with CGD during childhood.
Having explored a number of treatment plans a blood stem cell transplant is the best option in order to her help beat this. Sadly none of Praise’s family are a match and currently there is no match anywhere in the world. Praise and her family have not been without loss from the disease. Her elder sister, Valerie, passed away in April 2020, a couple of months shy of her ninth birthday.
The search for a donor is made even more challenging due to Praise’s ethnicity, she is Nigerian. Patients from Black, Asian or other minority backgrounds have only a 20% chance of finding the best possible stem cell donor match.
Praise’s family are encouraging everyone but people particularly from similar background to take the first step and register as a potential lifesaver . Not only could you help Praise but other people across the world who are looking for their blood stem cell match too
Every 20 minutes, someone is diagnosed with blood cancer. This diagnosis is devastating, and during the corona virus outbreak, it is even more crucial that we do all we can to offer hope to people with blood cancer and blood disorders. We have seen the numbers of people joining the blood stem cell register decline dramatically in recent times, and now, more than ever before, we need you to sign up. For many, a blood stem cell donation is their best chance of recovery and only 30% of people find a match within their family. This means the remainder will need to find an anonymous blood stem cell donor, and that could be you.
A note about Coronavirus
We understand there are lots of worries and concerns around coronavirus and would like to reassure you that it is completely safe to request and send in your swabs.
If you're a match
If you are identified as a match, you will donate in one of two ways. In the majority of cases this is via a process called “Peripheral Blood Stem Cell collection”, which is a little like giving blood. In 10% of cases, the stem cells are taken from your bone marrow, under general anaesthetic. The method of donation is chosen by the patients team based on what is most suitable for them.
Together we will beat blood cancer.
To register as a blood stem cell donor, you need to be between 17-55, in general good health and not registered with another donor centre. To check your eligibility and request your swab kit, follow the link below.
It costs us £40 to register a new donor on the UK stem cell registry. As a charity, we rely on monetary donations from the public to help cover this cost and greatly appreciate any contribution, no matter how big or small.
If you are unable to register as a potential donor, we would be very grateful if you could consider making a contribution towards the cost of a registration.