Thank you for attending the ACLT and 10,000 Donors Virtual Registration drive, presented by ACLT co-founders Orin Lewis OBE and Beverley De-Gale OBE, and 10,000 Donors campaigner Peter McCleave and his wife Jenny McCleave.
We are grateful to you for taking the time out of your work schedule to listen to our story and learn how you can potentially give the gift of life to someone in desperate need.
During the presentation you would have heard Orin, Beverley, Peter and Jenny speak about how important it is for more people of all races to join the blood stem cell register, but here’s a reminder of some important stats to consider:
“It our mission to ensure there are matched donors waiting and available for patients when they need it; that blood stem cells are as available to us all as Aspirin. It is crucial that we do all we can to offer hope to people with blood cancer and blood disorders.
Regardless of your racial background, we’re glad you’ve decided to take the step of potentially becoming a lifesaver to someone else in desperate need. There are many individuals who look like you and are in need of a blood stem cell donation to enable them to beat blood cancer and live life to the fullest alongside their loved ones.
Please do share your news with your wider family and friends to encourage them to join too.
Orin, Bev, Pete, Jenn
Every 20 minutes, someone is diagnosed with blood cancer. This diagnosis is devastating, and during the corona virus outbreak, it is even more crucial that we do all we can to offer hope to people with blood cancer and blood disorders. We have seen the numbers of people joining the blood stem cell register decline dramatically in recent times, and now, more than ever before, we need you to sign up. For many, a blood stem cell donation is their best chance of recovery and only 30% of people find a match within their family. This means the remainder will need to find an anonymous blood stem cell donor, and that could be you.
A note about Coronavirus
We understand there are lots of worries and concerns around coronavirus and would like to reassure you that it is completely safe to request and send in your swabs.
If you're a match
If you are identified as a match, you will donate in one of two ways. In the majority of cases this is via a process called “Peripheral Blood Stem Cell collection”, which is a little like giving blood. In 10% of cases, the stem cells are taken from your bone marrow, under general anaesthetic. The method of donation is chosen by the patients team based on what is most suitable for them.
Together we will beat blood cancer.
To register as a blood stem cell donor, you need to be between 17-55, in general good health and not registered with another donor centre. To check your eligibility and request your swab kit, follow the link below.
ACLT - www.aclt.org.uk - was co-founded by Beverley De-Gale OBE and Orin Lewis OBE in 1996, after they received the devastating news their son Daniel De-Gale, would need a blood stem cell transplant (bone marrow) to beat his three-year battle with acute lymphoblastic leukaemia (ALL). He was just 6 years old.
Bone marrow has racially specific characteristics which meant Daniel’s donor could only be found from the black or mixed-race population of which 550 were registered.
Daniel touched the hearts of the nation as he overcame the incredible odds of 1 in 250,000 to become the first black individual in the UK (aged 12), to receive a lifesaving stem cell transplant from an unrelated donor in 1999. He received the transplant after three years of campaigning alongside his parents, for donors to step forward and join the stem cell registry.
Daniel beat his fight against leukaemia and lived a happy life alongside his family and friends for several years; however, on 8th October 2008, Daniel passed away due to multiple organ failure.
It is the belief of both Beverley and Orin, that Daniel waited too long for an unrelated matched donor to be found, which resulted in drastic complications with his health
Despite their sad and painful loss Beverley and Orin continue with their life saving work of spreading awareness and have registered over 160,000 potential Stem Cell donors, found matches for over 150 people with blood cancer and inspired thousands of new Blood and Organ Donors.
Pete McCleave, 42, was diagnosed with acute myeloma - a rare and incurable blood cancer in 2017. He was advised that his best hope for survival was a blood stem cell transplant, and was given a maximum of seven years to live, unless a stem cell donor was found.
So far, a match has been elusive and Pete’s search continues.
This is devastating news for anyone to contend with and for many it would stop them in their tracks. Not Pete! He has since embarked on a global search to find his match and matches for others with blood cancer by launching, www.10000donors.com supported by DKMS. Incredibly, his website has registered over 51,000 new potential donors and found matches for 15 people with blood cancer. Just not his. Yet.
Pete has boundless energy which he has channelled into raising awareness and fundraising antics such as the Crumball Rally which he completed in 2019. Incredibly he has raised over £70,000 for DKMS. He has given so much to others and now he needs your help.
If you are eligible and would like to help Pete and others like him, please take the time to request a swab kit and help Pete and ACLT, register more potential lifesavers within your organisation!