11 month old Reign Miller-Hardy was diagnosed with a genetic condition called hemophagocytic lymphohistiocytois (HLH) in August 2020. This life-threatening condition causes his own immune system to attack vital organs and tissues including the brain, liver and bone marrow. Currently undergoing intensive chemotherapy, the family are now seeking a matching stem cell donor to help save their son’s life.
Prior to this Reign was a seemingly healthy baby boy. He had colds and coughs but nothing that appeared or felt out of the ordinary at the time. In the lead up to his diagnosis Reign had a temperature and wasn’t himself – the doctors thought it was virus or an ear infection but when things didn’t improve Reign was tested for Covid-19, the results came back negative. Great-Auntie Lisa says “Looking back it all makes sense, it is very difficult for his parents to see their son going through this. We need you to register to help give Reign and others a second chance at life.”
This one in every one million condition which mainly affects males has struck baby Reign. He is in pain on a daily basis and has a constant swollen stomach. Seeing him so sad “it is the worst pain I have ever felt” says Mum, Ashleigh Miller. The family including Dad, Scott and sisters Kianna, 15, and Elle, 13, are yearning for Reign to reach his first birthday next month, September 2020. Prior to diagnosis Reign was such a happy smiley little boy who brought joy to everyone around him.
Please take the first steps to become a potential lifesaver and register for your home swab kit. You could help Reign and the thousands of other people fight against blood cancer.
Every 20 minutes, someone is diagnosed with blood cancer. This diagnosis is devastating, and during the corona virus outbreak, it is even more crucial that we do all we can to offer hope to people with blood cancer and blood disorders. We have seen the numbers of people joining the blood stem cell register decline dramatically in recent times, and now, more than ever before, we need you to sign up. For many, a blood stem cell donation is their best chance of recovery and only 30% of people find a match within their family. This means the remainder will need to find an anonymous blood stem cell donor, and that could be you.
A note about Coronavirus
We understand there are lots of worries and concerns around coronavirus and would like to reassure you that it is completely safe to request and send in your swabs.
If you're a match
If you are identified as a match, you will donate in one of two ways. In the majority of cases this is via a process called “Peripheral Blood Stem Cell collection”, which is a little like giving blood. In 10% of cases, the stem cells are taken from your bone marrow, under general anaesthetic. The method of donation is chosen by the patients team based on what is most suitable for them.
Together we will beat blood cancer.
To register as a blood stem cell donor, you need to be between 17-55, in general good health and not registered with another donor centre. To check your eligibility and request your swab kit, follow the link below.
It costs us £40 to register a new donor on the UK stem cell registry. As a charity, we rely on monetary donations from the public to help cover this cost and greatly appreciate any contribution, no matter how big or small.
If you are unable to register as a potential donor, we would be very grateful if you could consider making a contribution towards the cost of a registration.