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Veer's Story

In 2019, Veer was sadly diagnosed with Fanconi Anaemia, a rare genetic disease. As a result, his bone marrow does not function properly. His family have been told that his best hope of survival is a blood stem cell transplant. Unfortunately Veer’s sister, the most likely family member to be a good match was found not to be. So the family must look to the stem cell register for an unrelated donor.

Currently only 2% of the UK population are registered as potential stem cell donors, and just 13% come from minority ethnic backgrounds. Patients from the BAME community have just a 20% chance of finding a stem cell donor compared to 69% from those of a Northern European background.

Let’s change these statistics together and change lives. Every donor could make the difference. YOU could make a difference.

If you’re aged 17-55 and in general good health, please request a swab kit to become a potential blood stem cell donor.

Veer’s need for a stem cell match is now VERY URGENT. Please act today and REGISTER NOW. Thank you very much

In the UK, a woefully low 2% of the UK population are on the stem cell register. And people from BAME backgrounds make up less than 14% of registrations. Even more shocking is that people from minority ethnic backgrounds have just a 20% chance of finding a stem cell donor match compared to 69% from those of a Northern European background.

Stem cell transplants are sometimes the only hope of survival for those diagnosed with a blood cancer or blood disorder. A blood a stem cell transplant can also be used for treating other conditions such as Sickle Cell disease, Thalassaemia and other auto-immune conditions.

Sadly, many people with blood cancer from BAME backgrounds face significant challenges in finding a suitable match. This isn’t because a match doesn’t exist, it’s simply because there aren’t enough BAME people registered as donors. DKMS works hard to increase the size and diversity of the blood stem cell registry.

Last year in the UK, there were cases where NO suitable donors from Black, African-Caribbean, East Asian and some other minority ethnic backgrounds were available to patients of the same ethnicities. We want to change this now and for the future so people from BAME communities have the same chances as everyone else.

If you are from a BAME community, your decision to register and commit to donate, could give a person with blood cancer at second chance at life.

Let’s change these statistics together and change lives. Every donor could make a difference. You could make a difference.

A TWO minute swab of the inside of your cheek is all it takes to get registered. It’s THAT simple!

**(source: UK Aligned Registry Report 2018-19)

Every 20 minutes, someone is diagnosed with blood cancer. This diagnosis is devastating, and during the corona virus outbreak, it is even more crucial that we do all we can to offer hope to people with blood cancer and blood disorders. We have seen the numbers of people joining the blood stem cell register decline dramatically in recent times, and now, more than ever before, we need you to sign up. For many, a blood stem cell donation is their best chance of recovery and only 30% of people find a match within their family. This means the remainder will need to find an anonymous blood stem cell donor, and that could be you.

Information about registration

Registering as a blood stem cell donor is easy, simply check your eligibility and request your home swab kit. Once you receive the kit, you will need to swab the inside of your cheek, following the instructions on the pack, before sending them back to us. Once we receive your swabs, they are processed in our lab to determine you tissue typing. Your typing is then stored, in an anonymised form, on the global database. This means you can be identified as a match for anyone in the world

A note about Coronavirus

We understand there are lots of worries and concerns around coronavirus and would like to reassure you that it is completely safe to request and send in your swabs.

If you're a match

If you are identified as a match, you will donate in one of two ways. In the majority of cases this is via a process called “Peripheral Blood Stem Cell collection”, which is a little like giving blood. In 10% of cases, the stem cells are taken from your bone marrow, under general anaesthetic. The method of donation is chosen by the patients team based on what is most suitable for them.

Together we will beat blood cancer.

To register as a blood stem cell donor, you need to be between 17-55, in general good health and not registered with another donor centre. To check your eligibility and request your swab kit, follow the link below.

It costs us £40 to register a new donor on the UK stem cell registry. As a charity, we rely on monetary donations from the public to help cover this cost and greatly appreciate any contribution, no matter how big or small.

If you are unable to register as a potential donor, we would be very grateful if you could consider making a contribution towards the cost of a registration.