Henry is battling diamond blackfan anaemia, a rare blood disorder

Little Henry from Essex is relying on regular blood transfusions to survive. Since the first months of his life he has been battling Diamond Blackfan Anaemia, a rare blood disorder. Henry’s family needs your help to change his situation. Henry needs a matching blood stem cell donor. Please take a few minutes to register as a potential donor.

Henry's treament for Diamond Blackfan Anaemia 

“I am Zoe, Henry’s mum. It’s extremely humbling being reliant on the kindness of strangers to keep your child alive. We’ve found this ever since Henry was born, with him being reliant on blood donors and now he’s relying on the kindness of another stranger to donate their stem cells in the hope it will give him a healthier, happier life."

As a result of his diamond black fan anaemia, Henry is receiving blood transfusions every 3-4 weeks, check ups every few months and sees a specialist annually. A blood stem cell transplant is now Henry's best chance of survival because he is not responding to other treatments. 

Henry's mum, Zoe, talks about how it feels to rely on strangers for help: 

“As a parent, you wish you had the ability to do that for your own child but sometimes, you just can’t, you have to have faith and hope that someone out there sees your plea for help and throws you a lifeline.

Our life has been like a roller coaster which is set to continue if Henry does not find a matching blood stem cell donor soon. Next to his anaemia, he is apparently the only person in the world to have a faulty myelodysplasia gene too. So it is more likely that he will develop a form of blood cancer."

About Henry

"My little Henry is an extremely happy little chap, although he is suffering a lot. He lives for music and loves playing the piano, guitar and drums. He loves anything that makes noise. Henry makes us all laugh when he’s pretending to conduct orchestras on the TV with his little baton!" 

Henry has been restricted from going to nursery because he had a very low immune system, doctors and nurses have said they haven't seen a child as calm as he is (although that could also be down to the bribes of chocolate and buzz lightyear!) 

"Henry doesn’t realise that he’s sick which is a blessing so he’s a very happy boy and makes the most of every day. He doesn’t look ill so people forget he has a chronic life threatening illness. His illness is forever and he is a ticking time bomb for many other horrific cancers. It feels like a cloud over us at all times that his health will deteriorate. 

All I wish for is my son to grow up and be a healthy child. This is only going to be possible with a blood stem cell transplant! Please register online with DKMS and share our story with your friends. Maybe you could save my son’s life!

Thank you very much, Henry’s mum.”

Help Henry or someone like him 

To help Henry, or someone like him, register as a blood stem cell donor today. 

To follow Henry's journey visit Henry's Little Heroes.

If you are already registered as a blood stem cell donor there’s no need to do it again but sharing the #HenrysLittleHeroe appeal and spreading the word would be of great help too. Thank you!