Ben, from West Sussex, enjoys Minecraft, and designing crazy and creative worlds with his younger sister, Rose. He loves steam trains and was due to go to Ffestiniog railway in Wales to celebrate 125 years of the Hunslet engines with his Dad, unfortunately he was in hospital that weekend.
Ben's diagnosis with acute myeloid leukaemia
In June 2018, Ben was diagnosed with acute myeloid leukaemia and is now searching for a blood stem cell donation. When he has the energy, Ben enjoys cycling and bouncing on the trampoline. During his time in hospital he has been missing his two dogs and cats as well as his two sisters. Initially, the family was told Ben would need four rounds of chemotherapy. They have since been told that a blood stem cell donation is his best chance of recovery. Either Ben’s mum, dad or two sisters are a match so are unable to donate their blood stem cells. Instead, the family is relying on a selfless stranger to provide a blood stem cell donation.
Ben’s mum, Ginny, said Ben “dreams of growing up and becoming a Lego Designer. It’s difficult to process the thought that this dream may not come true if Ben does not find a match for his blood stem cell donation.” He is a strong minded, generous little boy who loves to make people laugh and has a sharp wit, when he’s on good form. The family is looking forward to being a family of five again in the months to come and to Ben regaining his energy after his treatment.
How you can help Ben survive blood cancer
By signing up to become a blood stem cell donor, you could help make sure Ben, or someone like him, can go to Wales with his family next year and realize his dream of becoming a Lego designer.
Follow Ben's epic journey and get involved
You can follow Ben's progress on the families blog page or by following #bensepicjourney.